Originally discussed in President Obama’s State of the Union speech back in January, the White House is now looking for the help of those in the medical industry to ensure the President’s Precision Medicine Initiative (PMI) is a success.
In the official blog of the Executive Branch, Deputy Chief Technology Officer for Data Policy and Chief Data Scientist in the Office of Science and Technology Policy DJ Patil and PMI Project Manager Stephanie Devaney asked for the feedback of both the public and private sectors.
“We have seen incredible innovations in health care, and central to many of those advances have been people participating in research. PMI will provide the foundation that allows all Americans to sign up and share their data in a safe and responsible way, leading to scientific breakthroughs that will ultimately pave the way to better options for patients.”
“And that’s why we want to hear from you,” the blog continued.
According to the Executive Branch’s blog, the PMI is “dedicated to enabling a new era of medicine through research, technology and policies that will lead to the development of individualized, tailored treatments for patients.”
With the rise of electronic medical records in the health care industry, concerns over security of patient data and the interoperability between healthcare IT software have emerged. Through various technology innovations in the EMR industry as well as government initiatives in regard to interoperability, great strides have been made in the improvement of both areas.
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The PMI is hoping that both the security and interoperability with patient data will experience even more growth in the coming months and years. That growth, however, is contingent upon the help of healthcare providers and others in sharing feedback and data with the White House.
“We need healthcare providers to share their insight and help translate new findings into better care,” the blog post explains. “Leaders in healthcare must continue to work with the brightest minds from the technology sector on designing and testing new methods for opening up patient data and allowing individuals to donate their data to research.”
Specifically, the PMI is looking for additional examples of the following areas, as well as others:
- New approaches for deploying precision medicine into patient care to improve health
- The creation of workable models of information sharing across organizational boundaries with appropriate privacy and security protections
- New solutions for security issues in building large research data sets.
Those interested in participating and sharing feedback are encouraged to visit here.